Bed for ALS patient: Now Jan wants to get up in the morning
Jan Rønhoff, 52 years old. Was diagnosed with ALS, a degenerative neurological disease, at age 48. Married to Charlotte. Moved to a care home a year ago and got a RotoBed® at the same time.
I used to be a farmer, and for many years I was very active in both running and riding my bike. Now I am barely able to stand up for a few seconds without support. I try to focus on the positive things and experiences instead of spending my energy on being negative, and from this perspective the bed has been an incredibly big plus. I realize my situation as an ALS patient is only going to get worse and if I get too negative and frustrated, the disease will escalate. Before I got the RotoBed®, it had been a growing struggle to get up and go to bed; I spent so much effort and was often frustrated. Now it’s effortless and so comfortable I can almost do it in my sleep. The bed makes me want to get out of bed and begin a new day.
The RotoBed® is also neat considering it is a bed for an ALS patient. A normal hospital bed looks as cold as it could. When this one is moved to its regular position it looks like an ordinary bed, and this is important for me, not least in relation to my 11-year-old daughter who sometimes sleeps over in my flat. When your father gets a disease like this one, there are so many other things to deal with. Eventually I will get to a point where my home will look like a hospital, but it doesn’t have to be that way yet. It is important to me that my daughter can cope with one thing at a time.
The freedom of being able to manage without help has had a huge psychological effect on me. It also saves money for the municipality – before I had the RotoBed® automatic I needed help from caregivers at least four times a day. Now the only help I receive is one hour of cleaning every two weeks.